Privacy Statement

Database privacy is a primary concern. Please read our Privacy Statement, and if you understand and agree with it so indicate and your registration will proceed.

Privacy Statement
All members of the Board of Directors of Patient Databases are committed to maintaining the privacy of all the data and information submitted by patient participants. The web site is protected with Secure Socket Layer (SSL) encryption. All information transmitted to and from the site is subjected to high grade (RC4 128 bit) encryption.

Protection of Data: The two present sources of data in CLL Patient Databases include personal data submitted by participants when they register. At this point they select an ID (imurph, eg), a password, and an additional piece of information unique to them. When participants enter their laboratory report results they are required to identify themselves by their ID and password. Queries and reports may match personal data with lab report results, eg we may report on levels of lymphocytes from blood counts by the age, gender, geographical location, etc. of the total number of participants.

Limits on Access: Access to individual registration and blood count data is limited to registrants by password. It is otherwise limited to one or two members of the Board of Directors who are responsible for the overall management of the Database and to one or two technical administrators of the Database. The latter will be selected by the Board managers after consultation with the Advisory Committee and others.

Use of Data: Responses to queries and the development of CLL PDB reports will be made exclusively by the technical administrators after consultation with the Board of Directors managers. The data will never be made available, as an entity, to any person, group, or corporation.